Rare Disease Resources

The resources and tools below are designed to help you learn more about rare diseases.

National Organization for Rare Disorders

Learn more about for rare "orphan" diseases and assisting the organizations that serve them.

NOMID Alliance

Resource dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with CAPS (Cryopyrin-Associated Periodic Syndromes) and other autoinflammatory syndromes.

Pulmonary Hypertension Association

Information on the prevention and cure of pulmonary hypertension, as well as support, education, advocacy, and awareness for the pulmonary hypertension community.